Susun,
I'm sure that you are going to tell me what the doctors have told me. There is no reason for me to have chronic, vaginal pain and burning. After having one severe bladder infection my test are "all clear" and the pain must be in my mind. My spirit is dying and I don't know where else to turn. Can you help me understand this pain? I'm desperate.
Hello,
Your pain is real. No one can say different; what you experience is your experience. The source of the pain is never easy to determine, but your experience is. There are so many who feel all kinds of aches and pains and no answer is found. I am not convinced we humans can understand this complex life of ours enough to have a label for everything. So I do not assume because someone does not find a label for it it is not happening. Of course labels help give us direction to how to approach it. This is nice. Without labels sometimes we need to approach the situation more creatively, listening to our words. Have you found anything to soothe the pain and burning? What is your sense of what is causing it? I assume you took antibiotics for the bladder infection? If so, have you done anything to counter the damage to your good bacteria - probiotics, yogurt, etc.? I hear you say your spirit is dying. I would love to see you be able to care for this.
Have you heard of vulvodynia? You can read some here: http://www.nva.org/. and click here for some more information. I wonder if this sounds like what you are experiencing. I also know think this has been addressed at the forum mentioned before. Please write any time you would like.
If you happen to speak Polish, there is a big (probably the biggest in Europe) website about psychological, social and medical aspects of chronic vulvar pain/vulvodynia. http://www.vulvodynia.pl/
Posted by: vvv | June 24, 2009 at 06:27 AM
Thank you vvv!
Karen Joy
Posted by: KarenJoy | June 29, 2009 at 07:37 AM